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Usher Syndrome clinical trials recruiting in the U.S.

5 studies for Usher Syndrome are recruiting participants at sites across the United States.

Usher syndrome is an inherited disease that causes serious hearing loss and retinitis pigmentosa (eye disorder). Read the three types of the syndrome.

Recently updated studies

A 24-Month Trial of NPI-001 for the Preservation of Photoreceptors in Retinitis Pigmentosa Associated With Usher Syndrome

RecruitingPhase 3
Ages 18 and older · All sexes · Updated Nov 10, 2026 · NCT07710196

A Study to Investigate the Safety of OpCT-001 in Adults Who Have Primary Photoreceptor Disease (CLARICO)

RecruitingPhase 1/2
Ages 18 and older · All sexes · Updated Oct 15, 2026 · NCT06789445

Stem Cell Ophthalmology Treatment Study II

Recruiting
Ages 18 and older · All sexes · Updated Jun 29, 2026 · NCT03011541

Inherited Retinal Degenerative Disease Registry

RecruitingObservational studyHealthy volunteers welcome
All ages · All sexes · Updated May 19, 2026 · NCT02435940

Adaptive Optics Imaging of Outer Retinal Diseases

RecruitingObservational study
Ages 21 and older · All sexes · Updated May 8, 2026 · NCT05355415

From ClinicalTrials.gov, data retrieved Nov 15, 2026. Each study sets its own eligibility; the study team decides who can join.