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Usher Syndrome clinical trials recruiting in the U.S.
5 studies for Usher Syndrome are recruiting participants at sites across the United States.
Usher syndrome is an inherited disease that causes serious hearing loss and retinitis pigmentosa (eye disorder). Read the three types of the syndrome.
Recently updated studies
A 24-Month Trial of NPI-001 for the Preservation of Photoreceptors in Retinitis Pigmentosa Associated With Usher Syndrome
RecruitingPhase 3
Ages 18 and older · All sexes · Updated Nov 10, 2026 · NCT07710196A Study to Investigate the Safety of OpCT-001 in Adults Who Have Primary Photoreceptor Disease (CLARICO)
RecruitingPhase 1/2
Ages 18 and older · All sexes · Updated Oct 15, 2026 · NCT06789445Stem Cell Ophthalmology Treatment Study II
Recruiting
Ages 18 and older · All sexes · Updated Jun 29, 2026 · NCT03011541Inherited Retinal Degenerative Disease Registry
RecruitingObservational studyHealthy volunteers welcome
All ages · All sexes · Updated May 19, 2026 · NCT02435940Adaptive Optics Imaging of Outer Retinal Diseases
RecruitingObservational study
Ages 21 and older · All sexes · Updated May 8, 2026 · NCT05355415From ClinicalTrials.gov, data retrieved Nov 15, 2026. Each study sets its own eligibility; the study team decides who can join.