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Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Who can join
1 Day – 21 Years · All sexes
Full eligibility criteria
Inclusion Criteria: * The subject's age of onset of pulmonary hypertension must be prior to age 18 years * The person providing consent must be able to read either Spanish or English. * The subject (and/or parent/legal guardian) must be able to provide informed consent Exclusion Criteria: * Diagnosed with pulmonary hypertension after age 18 * Refusal to sign informed consent
About the study
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Sponsor: New York Medical College · Participants: 2,500 · Started: 2014-10
Contact the study team
- Erika B Rosenzweig, MD · Phone: 914-493-6160
- Robin Mascotti · Phone: 303-724-6513
Official record on ClinicalTrials.gov — NCT02249923
Locations in the U.S.
Conditions
From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.