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National Collaborative to Improve Care of Children With Complex Congenital Heart Disease
National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A Collaborative Initiative to Improve Care of Children With Complex Congenital Heart Disease
Who can join
15 Months · All sexes
Full eligibility criteria
Inclusion Criteria: * Fetuses or newborns diagnosed with HLHS or other univentricular condition * Intended to undergo Norwood procedure Exclusion Criteria: * None
About the study
The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
What is being tested
- Collaborative Learning Network (other)
Sponsor: Children's Hospital Medical Center, Cincinnati · Participants: 1,000 · Started: 2016-05
Contact the study team
Official record on ClinicalTrials.gov — NCT02852031
Locations in the U.S.
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.