Home › Pancreatic Cancer › NCT02886247
Pancreatic Cancer Registry: For Any Person With a Personal or Family History
National Familial Pancreas Tumor Registry
Who can join
Ages 18 and older · All sexes · Healthy volunteers welcome
Full eligibility criteria
Inclusion Criteria: * personal or family history of pancreas tumors Exclusion Criteria: * none
About the study
The NFPTR was established in 1994 to find the causes of pancreatic cancer. In brief, the investigators are interested in both the genetic and non-genetic causes of pancreatic cancer. The investigators are particularly interested in finding the genes that cause pancreatic cancer to cluster in some families. Up to 10% of pancreatic cancer patients have another close relative who has also developed pancreatic cancer. This clustering of pancreatic cancers in families has yet to be explained; however, the investigators continue to identify new familial pancreatic cancer genes that explain this clustering in subsets of families. For example, in 2009 and 2012 the investigators discovered that mutations in the PALB2 and ATM genes jointly account up to 5% of the clustering of pancreatic cancer in families.
Sponsor: Johns Hopkins University · Participants: 12,000 · Started: 1994-06
Contact the study team
- Alison Klein, PhD, MHS · Phone: 410-955-3502
Official record on ClinicalTrials.gov — NCT02886247
Locations in the U.S.
| Maryland | Johns Hopkins Hospital, Baltimore |
Conditions
From ClinicalTrials.gov, data retrieved Oct 1, 2026. Each study sets its own eligibility; the study team decides who can join.