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International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases

RecruitingObservational study

Who can join

All ages · All sexes

Full eligibility criteria

Inclusion Criteria:

* Patients who are diagnosed with NLSD / TGCV

Exclusion Criteria:

* None

About the study

This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.

Sponsor: Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan · Participants: 120 · Started: 2014-01

Contact the study team

Kenichi Hirano, MD, Ph.D · Phone: +81-6-6872-8215

Official record on ClinicalTrials.gov — NCT02918032

Locations in the U.S.

California	Stanford University, Stanford
New York	Columbia University, New York

From ClinicalTrials.gov, data retrieved Oct 1, 2026. Each study sets its own eligibility; the study team decides who can join.