Home › NCT03137355

The International Registry for Leigh Syndrome

Who can join

0 Days – 100 Years · All sexes

Inclusion Criteria:

* All participants with a diagnosis of Leigh syndrome will be invited to participate

Exclusion Criteria:

* People without Leigh syndrome

About the study

The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.

Sponsor: The University of Texas Health Science Center, Houston · Participants: 200 · Started: Jun 17, 2015

Contact the study team

• Mary Kay Koenig, MD · Phone: 713-500-7164
• William Guerra · Phone: 713-500-7164

Official record on ClinicalTrials.gov — NCT03137355

Locations in the U.S.

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.