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Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry

Who can join

All ages · All sexes

Inclusion Criteria any one or more of the following:

* clinical diagnosis of fibrous dysplasia
* clinical diagnosis of McCune-Albright syndrome
* clinical diagnosis of Mazabraud's syndrome

About the study

The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS.

Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info!

The FD/MAS Patient Registry: Your story powers research.

Sponsor: Tovah Burstein · Participants: 600 · Started: Oct 31, 2016

Contact the study team

• Tovah Burstein · Phone: 603-325-2489

Official record on ClinicalTrials.gov — NCT03231644

Locations in the U.S.

From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.