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Gynecologic Extramammary Paget's Disease

Prospective Registry of Gynecologic Patients With Extramammary Paget's Disease

Who can join

Ages 18 and older · Women

Inclusion Criteria:

* Females
* Age 18 years or older
* Diagnosed with primary or recurrent EMPD of vulva and/or perianal region of the body
* Willing and able to provide signed informed consent

Exclusion Criteria:

* Males
* Diagnosis of Paget's Disease in body areas other than vulvar or perianal region

About the study

In addition to evaluating treatment outcomes, tissue samples and swabs will be collected as part of this study to allow physicians to better understand Extramammary Paget's Disease (EMPD). The researchers also want to learn more about the microorganisms (microbiome) that live on or near the areas of skin affected by EMPD, in order to better understand this condition.

Sponsor: Mayo Clinic · Participants: 100 · Started: Feb 19, 2018

Contact the study team

• Maureen A. Lemens, R.N. · Phone: 507-293-1487
• Karen P Ishitani, RN · Phone: 507-538-5355

Official record on ClinicalTrials.gov — NCT03564483

Locations in the U.S.

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.