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Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Registry for Patients With Desmoplastic Small Round Cell Tumor

Who can join

All ages · All sexes

Inclusion Criteria:

* Participants must have a diagnosis of desmoplastic small round cell tumor
* Participants may be of any age as long as the appropriate consent and assent may be obtained
* Willing to provide historical and longitudinal clinical data

Exclusion Criteria:

* Participant unwilling to provide consent or share historical and longitudinal clinical data

About the study

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.

The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Sponsor: Memorial Sloan Kettering Cancer Center · Participants: 250 · Started: Dec 22, 2020

Contact the study team

• Emily Slotkin, MD · Phone: 1-833-675-5437
• Shakeel Modak, MD · Phone: 1-833-675-5437

Official record on ClinicalTrials.gov — NCT04690374

Locations in the U.S.

Conditions

• Desmoplastic Small Round Cell Tumor

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.