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Measuring Impact of Computer Gaming on Arm Use in Rett Syndrome
Assessing the Effectiveness of Customized Computer Activities on Reducing Stereotypies and Improving Independent Upper Extremity Motor Skills in Persons with Rett Syndrome
Who can join
Ages 4 to 60 · All sexes
Full eligibility criteria
Inclusion Criteria: * Rett syndrome, * Understanding of cause and effect, * Functional range of motion of arms to complete the movements needed to control the games. Exclusion Criteria: * no competing orthopedic or neuromuscular diagnosis that impacts shoulder movements
About the study
Using a tele-research approach, we will recruit, enroll, guide and support carers and participants to engage in computer based activities (modified virtual reality) with the primary outcome of reducing stereotypies and increasing independent arm and hand use and secondary outcome of improving quality of living. Because of our virtual approach, we are able to recruit from multiple countries and all states and territories of the USA.
What is being tested
- Modified Virtual Reality Gaming (behavioral)
Sponsor: Georgetown University · Participants: 10 · Started: May 1, 2021
Contact the study team
- Pamela S Diener, PhD, MS, OT/L · Phone: 2403811763
Official record on ClinicalTrials.gov — NCT05012475
Locations in the U.S.
| District of Columbia | Georgetown University School of Medicine, Washington D.C. |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.