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African Americans (AA) Communities Speak

RecruitingHealthy volunteers welcome

African Americans (AA) Communities Speak: Partnering With AA in the North and South to Train Palliative Care Clinicians to Address Interpersonal and Systemic Racism and Provide Culturally Aligned Care.

Who can join

All ages · All sexes · Healthy volunteers welcome

Full eligibility criteria
Inclusion Criteria: Aim 1.1

Person with serious Illness:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.

Bereaved family member:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.

Exclusion Criteria

Person with serious illness:

-Cannot be receiving hospice care

Bereaved Family Member:

-Cannot be a paid "sitter"

Inclusion Criteria: Aim 1.2

Bereaved Family member:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys

Pastors:

* Self-identifying as African American
* White, Non-Hispanic or Latino
* Sged ≥18 years old.

Inclusion Criteria: Aim 3

Clinician eligibility:

* Practice at a University of Alabama at Birmingham (UAB) or Montefiore/Einstein site that provides care to patients eligible for outcomes surveys
* At least 3 months of clinical practice at the study site prior to the intervention training to measure pre-intervention patient surveys

Exclusion criteria:

-Lack of at least 3 months of clinical practice at the study site prior to the intervention training.

Patient eligibility:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino, 3. age ≥60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.

Exclusion criteria include:

-Currently receiving hospice care.

Family member eligibility:

* Age ≥ 18 years
* English-speaking
* Community-dwelling
* Unpaid care provider of a person with a serious illness.

Exclusion criteria: 1. Cannot be a paid "sitter".

About the study

African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings.

Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.

What is being tested

Sponsor: University of Alabama at Birmingham · Participants: 60 · Started: Feb 27, 2025

Contact the study team

Official record on ClinicalTrials.gov — NCT05908487

Locations in the U.S.

AlabamaUAB, Birmingham
New YorkAlbert Einstein/Montefiore, The Bronx

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.