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Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers
Who can join
Ages 18 and older · All sexes
Full eligibility criteria
Inclusion Criteria: * Family caregivers of individuals with intellectual and/or developmental disabilities living in a community setting * Ability to speak English or Spanish * Access to a tablet, computer, or smartphone Exclusion Criteria: * Speaks a language other than English or Spanish * Does not have access to a tablet, computer, or smartphone * Caregivers who care for individuals with intellectual and developmental disabilities who are less than 10 years of age. * Special populations such as: fetuses, prisoners, or other institutionalized individuals
About the study
This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.
What is being tested
- Map Our Life (behavioral)
- Attention Control (behavioral)
Sponsor: Northwell Health · Participants: 1,050 · Started: Dec 22, 2023
Contact the study team
- Sophia Jan, MD, MSHP · Phone: (516) 465-4377
Official record on ClinicalTrials.gov — NCT06065527
Locations in the U.S.
| New York | Cohen Children's Medical Center, New Hyde Park |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.