Home › Sarcoidosis › NCT06234384
Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)
Who can join
Ages 7 and older · All sexes · Healthy volunteers welcome
Full eligibility criteria
Inclusion Criteria: 1. English speaking 2. Consent 3. Sarcoidosi diagnosis - Exclusion Criteria: NONE
About the study
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.
What is being tested
- Sarcoidosis diagnosis (other)
Sponsor: Foundation for Sarcoidosis Research · Participants: 6,833 · Started: 2013-07
Contact the study team
- Leslie Serhuck, MD MA Mbioethics · Phone: 312-341-0500
- Tricha Shivas, MBe · Phone: 312-341-0500
Official record on ClinicalTrials.gov — NCT06234384
Locations in the U.S.
| Illinois | Foundation For Sarcoidosis Research, Chicago |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.