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Myasthenia Gravis Foundation of America Global MG Patient Registry

Who can join

Ages 18 and older · All sexes

Inclusion Criteria:

* age over 18
* positive MG diagnosis

Exclusion Criteria:

* age under 18
* misdiagnosed with MG

About the study

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:

* How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Sponsor: Myasthenia Gravis Foundation of America · Participants: 3,800 · Started: Oct 12, 2013

Contact the study team

• National Director, Patient Registry · Phone: 8005415454

Official record on ClinicalTrials.gov — NCT06617741

Locations in the U.S.

Conditions

• Myasthenia Gravis

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.