Home › Developmental Disabilities › NCT06986863
Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD
Who can join
Ages 18 and older · All sexes
Full eligibility criteria
Inclusion criteria for primary participant/PWIDD (person with intellectual and/or developmental disability): * have visited a Northwell Health Emergency Department in the last 12 months * have a confirmed intellectual and/or developmental disability * must be 18 years of age or older at enrollment * have a smart phone or tablet that connects to the internet * have a preferred language of English
About the study
The purpose of this research study is to compare the Always Uniquely Me (AUM) mobile application to regular medical care. The investigators want to know if AUM is helpful at decreasing use of restraints and improving experience in the emergency department (ED) for people with intellectual and developmental disabilities (PWIDD). The investigators will also be looking at how certain characteristics of the PWIDD participants may affect those outcomes.
What is being tested
- Always Uniquely Me mobile phone application (other)
Sponsor: Northwell Health · Participants: 1,500 · Started: Sep 24, 2025
Contact the study team
- Sophia Jan Division Chief, MD, MSHP · Phone: (516) 465-4377
- Caren Steinway, LMSW, MPH · Phone: (516) 316-2530
Official record on ClinicalTrials.gov — NCT06986863
Locations in the U.S.
| New York | Cohen Children's Medical Center, New Hyde Park |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.