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UNTOLD Ovarian Cancer Unmet Needs Survey
UNderstanding The Experience of Ovarian Cancer Life After Diagnosis (UNTOLD) Study
Who can join
Ages 18 and older · Women
Full eligibility criteria
Inclusion Criteria: * Ability to read and write in English * Diagnosed with ovarian cancer (ovarian, primary peritoneal, fallopian tube) Exclusion Criteria: \-
About the study
The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.
Sponsor: Masonic Cancer Center, University of Minnesota · Participants: 2,000 · Started: Jul 10, 2025
Contact the study team
- Rachel Vogel, PhD · Phone: 612-624-6928
Official record on ClinicalTrials.gov — NCT07070726
Locations in the U.S.
| Minnesota | Masonic Cancer Center, Minneapolis |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.