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Phase 4 of Designed With You

Building Active Living and Addressing Needs for Caregiver Empowerment (BALANCE) Study - Phase 4 of Designed With You

Who can join

Ages 18 and older · All sexes

Inclusion Criteria:

* 18 years of age and older,
* Community dwelling in the state of Maryland,
* Self report of physical or sensory disability and
* self-report of serving as a family caregiver for a person for at least 10 hours/week.

Exclusion Criteria:

* have a terminal diagnosis (\<1 year expected survival), and
* \> severe cognitive impairment (5-7 errors) based on the Short Portable Mental Status Questionnaire (SPMQ)

About the study

The purpose of this study is to provide evaluate the feasibility of a structured 8-10-week, multi-component intervention that integrates individualized resource navigation, personalized self-care planning, emergency and end of life (EOL) preparedness, and peer support to improve the well-being, resource access and social connectedness of caregivers with disabilities. For this study we are interested in caregivers over the age of 18 who have some form (e.g. mobility or sensory) disability and are caring for a person with a disability and/or a chronic illness.

What is being tested

• BALANCE Building Active LIving and Addressing Needs for Caregiver Empowerment (behavioral)

Sponsor: Johns Hopkins University · Participants: 20 · Started: Jan 1, 2026

Contact the study team

• Janiece Taylor, PhD, RN · Phone: 443-287-4503
• Alicia Cooke · Phone: 4109559954

Official record on ClinicalTrials.gov — NCT07157995

Locations in the U.S.

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.