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A Study of Questionnaires in Adolescents and Young Adults With Cancer
RecruitingObservational study
Psychometric and Linguistic Validation of PRO-AYA: Patient-Reported Outcomes for Adolescents and Young Adults (15-39) With Cancer
Who can join
Ages 15 to 39 · All sexes
Full eligibility criteria
Inclusion Criteria: * English- or Spanish proficient o As assessed by two items: How well do you speak English? What is your preferred language for healthcare? * Between the ages of 15-39 * Diagnosed with cancer or the recurrence of a cancer as per clinician report and/or received active treatment for cancer between the ages of 15-39 * Able to complete questionnaires by themselves or with assistance as per self-report * For Cohort 1 ONLY: * 3 months from last treatment without plan to initiate any form of cancer-directed treatment in the next 3 months OR * On chronic cancer-directed therapy for the last 3 months without plan to change cancer-directed therapy in the next 3 months AND * ECOG Performance Status (0-4) or KPS/Lansky Score (0-100)
About the study
The purpose of this study is to evaluate a questionnaire called PRO-AYA: Patient-Reported Outcomes for Adolescents and Young Adults.
What is being tested
- Patient-Reported Outcome Surveys (other)
- Spanish version of PRO-AYA and the cognitive interview (other)
Sponsor: Memorial Sloan Kettering Cancer Center · Participants: 120 · Started: Sep 30, 2025
Contact the study team
- Thomas Atkinson, PhD · Phone: 646-888-0089
- Marie Barnett, PhD · Phone: 646-608-8206
Official record on ClinicalTrials.gov — NCT07212166
Locations in the U.S.
From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.