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Survey on Physical Activity and Qualify of Life in Fibromuscular Dysplasia

National Survey of Physical Activity Restrictions and Quality of Life Among Patients With Fibromuscular Dysplasia

Who can join

Ages 18 to 100 · All sexes

Inclusion criteria:

* Participants with a diagnosis of fibromuscular dysplasia
* Age range = 18-100 years

Exclusion Criteria:

* Subjects who have an inability to complete the electronic consent form or electronic survey for any reason
* Subjects who are non-English speaking who cannot read the electronic consent form or electronic survey

About the study

Fibromuscular dysplasia (FMD) is a disease of the arteries that is not due to plaque build-up or inflammation. While some patients with FMD are health, some may experience heart attacks, strokes, aneurysms or blood vessel dissection/tearing which can be life-threatening. It predominantly impacts women and younger patients. As a result of this diagnosis, many patients are counseled to restrict or avoid certain physical activities out of concern for provoking or worsening vascular complications. There are no guidelines or consensus recommendations regarding appropriate physical activity for patients with FMD. The lack of consensus may lead to confusion for patients and may negatively impact their quality of life. This study will conduct a large, national survey of patients with FMD to assess the type of physical activity restrictions and impact on quality of life and emotional well-being.

Sponsor: Vanderbilt University Medical Center · Participants: 2,000 · Started: Apr 14, 2026

Contact the study team

• Amanda Morrison, MD · Phone: 615-322-5000

Official record on ClinicalTrials.gov — NCT07529691

Locations in the U.S.

Conditions

• Spontaneous Coronary Artery Dissection

From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.