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Rare Diseases clinical trials in New York City, NY

3 studies for Rare Diseases are looking for participants at sites in and around New York City (within about 30 miles). Open a study to see who can join and how to contact the study team.

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A Study Evaluating the Real-World Experience of Givinostat in Patients With Duchenne Muscular Dystrophy

RecruitingObservational study
  • Columbia University Medical Center, New York
Ages 6 and older · All sexes · Updated Jul 2, 2026 · NCT07127978

MPN PROGRESSion Registry: Observational Study Tracking Symptoms, Treatments, and Disease Progression in People With Myeloproliferative Neoplasms (MPNs)

RecruitingObservational study
  • Memorial Sloan Kettering Cancer Center, New York
Ages 18 and older · All sexes · Updated Jan 23, 2026 · NCT07362225

The ExTINGUISH Trial of Inebilizumab in NMDAR Encephalitis

RecruitingPhase 2
  • Mount Sinai, New York
  • Columbia University Medical Center, New York
Ages 12 and older · All sexes · Updated Jul 1, 2025 · NCT04372615

About Rare Diseases

A rare disease is one that affects fewer than 200,000 people in the United States. There are nearly 7,000, affecting more than 25 million Americans.

More about Rare Diseases on MedlinePlus

Rare Diseases trials in other cities

Other studies in New York City

From ClinicalTrials.gov, data retrieved Oct 6, 2026. Each study sets its own eligibility; the study team decides who can join.