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The Alpha-1 Foundation's and University of Florida's Alpha-1 Coded Testing (ACT) Study

RecruitingObservational studyHealthy volunteers welcome

Who can join

All ages · All sexes · Healthy volunteers welcome

Full eligibility criteria
Inclusion Criteria:

* Individuals of any age at risk for alpha-1 antitrypsin deficiency on the basis of symptoms or family genetic risk.

Exclusion Criteria:

* Any person who has already had genotype and AAT level testing completed and has a qualified result.

About the study

The Alpha-1 Coded Testing (ACT) Study was established to study genetic testing and outcomes of individuals at risk for alpha-1 antitrypsin deficiency.

What is being tested

Sponsor: University of Florida · Participants: 50,000 · Started: 2001-01

Contact the study team

Official record on ClinicalTrials.gov — NCT00500123

Locations in the U.S.

FloridaUniversity of Florida, Gainesville

Conditions

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.