Home › Lymphatic Abnormalities › NCT02399527

Lymphatic Anomalies Registry for the Assessment of Outcome Data

Who can join

All ages · All sexes

Inclusion Criteria:

* Clinical diagnosis of complex vascular tumor, malformation or overgrowth syndrome with significant lymphatic component

About the study

Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.

Sponsor: Boston Children's Hospital · Participants: 1,000 · Started: 2013-06

Contact the study team

• Kelsey Deemer, BS · Phone: 617-355-5226
• Meghan O'Hare, CPNP · Phone: 617-355-5226

Official record on ClinicalTrials.gov — NCT02399527

Locations in the U.S.

Conditions

• Lymphatic Abnormalities
• Vascular Malformations

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.