Home › Leukemia › NCT02560883
Hairy Cell Leukemia Patient Data Registry
Clinical Research in Hairy Cell Leukemia: Surveillance and Documentation of Clinical Outcomes in a Rare Form of Adult Leukemia
Who can join
Ages 18 and older · All sexes
Full eligibility criteria
Inclusion: * Patients with classic hairy cell leukemia * Patients with the variant of hairy cell leukemia. Exclusion: * Children are excluded from the study, since Hairy Cell Leukemia wasn't described in children.
About the study
The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.
Sponsor: Ohio State University Comprehensive Cancer Center · Participants: 5,000 · Started: Jan 2, 2013
Contact the study team
- Hairy Cell Leukemia Research Data Registry · Phone: 614-685-4296
- Elena Botoulas, BS · Phone: 614-685-0635
Official record on ClinicalTrials.gov — NCT02560883
Locations in the U.S.
Conditions
From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.