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The T1D Exchange Registry
Who can join
All ages · All sexes
Full eligibility criteria
Inclusion Criteria: * Clinical diagnosis of type 1 diabetes. * Individuals younger than 18 years of age must have parent/guardian consent. * Must be able to read and understand English. * Currently living in the United States Exclusion criteria: * Does not use insulin and has not had a pancreatic or islet cell transplant. * Cannot fully read and understand English. * Does not currently live in the United States.
About the study
The T1D Exchange Registry is a research study, conducted over time, for individuals with type 1 diabetes and their supporters. Participants volunteer to provide their data for research (for example, by answering questions in annual surveys). Once enrolled, Registry participants have the opportunity to sign up for other studies on various topics related to type 1 diabetes.
To participate, you will be asked to:
* Read and sign an online informed consent form * Take a survey describing specific demographic and type 1 diabetes management information * Update your information annually * Periodically opt in for additional research opportunities (if you choose), i.e. taking new surveys or uploading health device data
What is being tested
- No intervention (other)
Sponsor: T1D Exchange, United States · Participants: 50,000 · Started: Dec 13, 2018
Contact the study team
- Kelsie LaFerrier · Phone: (617) 892-9941
- Julia Ravelson · Phone: (617) 892-9941
Official record on ClinicalTrials.gov — NCT04629586
Locations in the U.S.
| Massachusetts | T1D Exchange, Boston |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.