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Pulmonary Hypertension Biorepository and Registry

Who can join

Ages 18 and older · All sexes

Inclusion Criteria:

1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
3. Patient is ≥ 18 years of age or older

Exclusion Criteria:

1. Participant declines to participate (living patients only)
2. Participant is unable to provide informed consent (living patients only)

About the study

Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.

Sponsor: University of Kansas Medical Center · Participants: 300 · Started: Aug 10, 2020

Contact the study team

• Luigi R Boccardi, Ed.D., MPH · Phone: 9135884022

Official record on ClinicalTrials.gov — NCT04808596

Locations in the U.S.

Conditions

• Pulmonary Hypertension
• Pulmonary Arterial Hypertension
• Familial Primary Pulmonary Hypertension

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.