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Data Collection Protocol for Patients With Von Hippel Lindau Disease

Who can join

Ages 18 and older · All sexes

Inclusion Criteria:

* Presence of genetic confirmation or clinical criteria consistent with vHL disease.
* Ability to understand and the willingness to sign a written informed consent document.

Exclusion Criteria:

• Patients with psychiatric illness/social situations that would limit compliance with study requirements.

About the study

To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

Sponsor: M.D. Anderson Cancer Center · Participants: 125 · Started: Aug 24, 2023

Contact the study team

• Eric Jonasch, MD · Phone: (713) 563-7232

Official record on ClinicalTrials.gov — NCT05955014

Locations in the U.S.

Conditions

• Von Hippel-Lindau Disease

From ClinicalTrials.gov, data retrieved Oct 1, 2026. Each study sets its own eligibility; the study team decides who can join.