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SMYLS Multi-site Trial
RecruitingHealthy volunteers welcome
Self-Management for Youth Living With Sickle Cell Disease: SMYLS Multi-site Trial
Who can join
Ages 14 to 21 · All sexes · Healthy volunteers welcome
Full eligibility criteria
Inclusion Criteria: * documentation in the electronic health record of any type of SCD * owns mobile device compatible with the intervention * access to the internet Exclusion Criteria: * Plans to relocate outside of study site area in the next 12 months * Plans to transition to adult care in 12 months or less * Parent/caregiver or provider report of neurocognitive impairment that precludes ability to use intervention and participate in study * non-English speaking
About the study
The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.
What is being tested
- Voice Crisis Alert V2 (behavioral)
- Electronic educational materials (behavioral)
Sponsor: Medical University of South Carolina · Participants: 272 · Started: Apr 4, 2024
Contact the study team
- Shannon Phillips, PhD, RN · Phone: 843-792-9379
- Margie Prentice, MBA · Phone: 843-792-4771
Official record on ClinicalTrials.gov — NCT06035939
Locations in the U.S.
| South Carolina | Medical University of South Carolina, Charleston |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.