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Feasibility Test of Action Planning in Pediatric IBD

Feasibility of a Care Team-Focused Action Plan to Improve Quality of Care for Children and Adolescents With Inflammatory Bowel Disease

Who can join

Ages 13 to 19 · All sexes

Inclusion Criteria:

* age 13-19 years old at time of recruitment; AND
* diagnosis at least 3 months earlier of Crohn's disease, ulcerative colitis, or indeterminate colitis (to exclude families who have not had sufficient time to become familiar with condition and/or clinic personnel); AND
* receiving ongoing care at UNC (at least one visit in the past year)

Exclusion Criteria:

* speaker of a language other than English or Spanish

About the study

The goal of this interventional study is to test the feasibility of a new communication tool, call MyIBD, in youth ages 13 to 19 years with inflammatory bowel disease. The main question\[s\] it aims to answer are:

* Is the MyIBD communication tool feasible to use in everyday clinical practice? * Does the MyIBD tool have potential to improve patients' self-management skills and the quality of care they receive?

Participants who receive the MyIBD intervention will complete surveys about their care at three times points - at study enrollment, at 6 months, and at 12 months. The surveys will help the research team learn about the feasibility of using MyIBD in practice and about any effects on patients' self-management skills and quality of care.

Researchers will compare those receiving a MyIBD document to a randomly selected control group (patients receiving usual care for pediatric inflammatory bowel disease) to see if self-management skills and quality of care differ between the groups.

What is being tested

• MyIBD (behavioral)

Sponsor: University of North Carolina, Chapel Hill · Participants: 60 · Started: Feb 5, 2024

Contact the study team

• Neal deJong, MD · Phone: 919-966-2504

Official record on ClinicalTrials.gov — NCT06186752

Locations in the U.S.

Conditions

• Inflammatory Bowel Disease

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.