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Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia
ENGAGE-D: Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia
Who can join
Ages 18 and older · All sexes · Healthy volunteers welcome
Full eligibility criteria
Inclusion: Care Partners and PLWD Dyad: 1. Care partners of PLWD who have a diagnosis of moderate to severe dementia. 2. Able to provide informed consent HHC Professionals: Care Managers and Field Nurses: 1. Care managers who regularly engage hospice transitions with care partners of PLWD 2. Age 18 or older Medical Providers: 1. Medical providers (e.g., physicians and nurse practitioners) who refer patients for hospice enrollment. 2. Age 18 or older HHC Administrators: 1. Home healthcare administrators who work with the Certified Home Health Agency or the Advanced Illness Management Program that refers patients to hospice care 2. Age 18 or older Exclusion Care Partner and PLWD Dyad 1. Under age 18 2. Care partners who are caring for PLWD with Mild Cognitive Impairment 3. PLWD with Mild Cognitive Impairment HHC Professionals: Care Managers, Medical Providers, Administrators 1\. Do not have experience managing hospice transitions for PLWD
About the study
This study will test a care management intervention to guide end-of-life care and hospice transitions for persons with dementia and their care partners receiving home healthcare and ascertain feasibility, acceptability, fidelity, and usability of a dementia care management hospice transitions checklist. This study will also examine hospice enrollment, time to enrollment, and care partner satisfaction with the intervention. The intervention will be delivered within usual care management within a large home healthcare agency.
What is being tested
- Dementia Care Management Checklist for Hospice Transitions (behavioral)
Sponsor: New York University · Participants: 96 · Started: May 13, 2026
Contact the study team
- Komal P Murali, PhD, RN, ACNP-BC · Phone: 212-998-5783
Official record on ClinicalTrials.gov — NCT07182357
Locations in the U.S.
| New York | NYU Rory Meyers College of Nursing and VNS Health, New York |
Conditions
From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.