Home › Spinal Muscular Atrophy › NCT07223489
Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System
RecruitingObservational study
Understanding the Diagnostic Pathway and Treatment Experience of Patients With Spinal Muscular Atrophy (SMA)
Who can join
Ages 18 and older · All sexes
Full eligibility criteria
Inclusion Criteria: * SMA diagnosis, age greater than or equal to 18 years Exclusion Criteria: * Deceased
About the study
Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.
What is being tested
- Telephone Interview (behavioral)
Sponsor: Medstar Health Research Institute · Participants: 200 · Started: Oct 10, 2025
Contact the study team
- Gabrielle Edwards, BS · Phone: 2022219998
Official record on ClinicalTrials.gov — NCT07223489
Locations in the U.S.
| District of Columbia | MedStar Health Research Institute, Washinton |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.