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Von Hippel-Lindau Syndrome clinical trials in Washington, DC

3 studies for Von Hippel-Lindau Syndrome are looking for participants at sites in and around Washington (within about 30 miles). Open a study to see who can join and how to contact the study team.

Recruiting for a study here? Feature it at the top of this page — $99 for 30 days →

National Eye Institute Biorepository for Retinal Diseases

RecruitingObservational studyHealthy volunteers welcome
  • National Institutes of Health Clinical Center, Bethesda · 7 mi away
Ages 2 to 120 · All sexes · Updated Oct 26, 2026 · NCT01496625

Natural History and Management of Von Hippel-Lindau (VHL) Associated Pancreatic Neuroendocrine Tumors

RecruitingPhase 2
  • National Institutes of Health Clinical Center, Bethesda · 7 mi away
Ages 12 and older · All sexes · Updated Oct 16, 2026 · NCT04074135

About Von Hippel-Lindau Syndrome

Von Hippel-Lindau syndrome (VHL) is a rare genetic disease that causes tumors and cysts to grow in your body. Learn about symptoms and treatment.

More about Von Hippel-Lindau Syndrome on MedlinePlus

Von Hippel-Lindau Syndrome trials in other cities

Other studies in Washington

From ClinicalTrials.gov, data retrieved Nov 15, 2026. Each study sets its own eligibility; the study team decides who can join.