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Von Hippel-Lindau Syndrome clinical trials in Boston, MA
3 studies for Von Hippel-Lindau Syndrome are looking for participants at sites in and around Boston (within about 30 miles). Open a study to see who can join and how to contact the study team.
Recruiting for a study here? Feature it at the top of this page — $99 for 30 days →
Belzutifan/MK-6482 for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), Von Hippel-Lindau (VHL) Disease-Associated Tumors, Advanced Gastrointestinal Stromal Tumor (wt GIST), or Solid Tumors With HIF-2α Related Genetic Alterations (MK-6482-015)
RecruitingPhase 2
- Massachusetts General Hospital ( Site 0111), Boston
Extension Study for Participants in Studies That Include Belzutifan (MK-6482-043/LITESPARK-043)
RecruitingPhase 3
- Beth Israel Deaconess Medical Center ( Site 0107), Boston
- Dana-Farber Cancer Institute ( Site 0105), Boston
MyVHL: Patient Natural History Study
RecruitingObservational studyHealthy volunteers welcome
- VHL Alliance, Boston
About Von Hippel-Lindau Syndrome
Von Hippel-Lindau syndrome (VHL) is a rare genetic disease that causes tumors and cysts to grow in your body. Learn about symptoms and treatment.
More about Von Hippel-Lindau Syndrome on MedlinePlus
Von Hippel-Lindau Syndrome trials in other cities
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From ClinicalTrials.gov, data retrieved Nov 15, 2026. Each study sets its own eligibility; the study team decides who can join.