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Emphysema Research Registry and Biosample Repository

RecruitingObservational studyHealthy volunteers welcome

Emphysema Research Registry; Screening Study and Genetic Testing

Who can join

Ages 21 and older · All sexes · Healthy volunteers welcome

Full eligibility criteria
Inclusion Criteria:

* Patients would be required to have COPD based on at least one of the following: clinical history, pulmonary function results, or radiographic results.

Exclusion Criteria:

* none

About the study

The Comprehensive Lung Center (CLC) at the University of Pittsburgh Medical Center (UPMC Health System) provides patients with any type of breathing or lung disorder a full range of diagnostic and therapeutic services. The Emphysema/COPD Research Center (ECRC) is a specialty clinic, within this center, that attempts to advance the understanding of emphysema and to evaluate new therapies for patients with emphysema. The Emphysema Research Registry will enable pulmonary research physicians to: 1) gather information and create a research registry of people who have been diagnosed with emphysema; 2) utilize this research registry with the purpose of conducting research that attempts to advance the understanding of emphysema and to evaluate new therapies; and, 3) use the research registry to identify potential candidates for future research programs. These aims will be achieved by the collection of DNA (genetic material)for analysis and storage in addition to pulmonary function tests and other medical information.

Sponsor: University of Pittsburgh · Participants: 3,000 · Started: 2000-08

Contact the study team

Official record on ClinicalTrials.gov — NCT00307281

Locations in the U.S.

PennsylvaniaUniversity of Pittsburgh Emphysema/COPD Research Center, Pittsburgh

Conditions

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.