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The National Amyotrophic Lateral Sclerosis Registry

Who can join

Ages 18 and older · All sexes

Inclusion Criteria:

\- U.S. citizens 18 years of age or older

Exclusion Criteria:

\-

About the study

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Sponsor: Centers for Disease Control and Prevention · Participants: 30,000 · Started: 2010-10

Contact the study team

• Paul Mehta, MD · Phone: 770-488-0556
• Kevin Horton, DrPH, MSPH · Phone: 770-488-1555

Official record on ClinicalTrials.gov — NCT01772602

Locations in the U.S.

Conditions

• Amyotrophic Lateral Sclerosis
• ALS and Motor Neuron Disease

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.