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Modifiable Variables in Parkinsonism (MVP)
Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]
Who can join
Ages 19 and older · All sexes
Full eligibility criteria
Inclusion Criteria: * Parkinson's disease (PD) * Parkinsonism * Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies) * Must have online access, an email address, basic computer literacy * Must be willing to complete online surveys every 6 months for 5 years Exclusion Criteria: * Inability to read/write English * Inability or unwillingness to complete surveys every six (6) months (\~90 min)
About the study
We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.
Sponsor: Bastyr University · Participants: 2,000 · Started: 2012-09
Contact the study team
- Research Assistant · Phone: 425-602-3306
Official record on ClinicalTrials.gov — NCT02194816
Locations in the U.S.
| Washington | Bastyr University, Kenmore |
Conditions
- Parkinson's Disease
- Shy-Drager Syndrome
- Progressive Supranuclear Palsy
- Corticobasal Degeneration
- Lewy Body Dementia
- Pick Disease of the Brain
From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.