Home › Synovial Sarcoma › NCT05910307

Synovial Sarcoma Registry / Biospecimen Repository

Synovial Sarcoma Registry and Biospecimen Repository

Who can join

All ages · All sexes

Inclusion Criteria:

1. Males or females of any age
2. Reported diagnosis of synovial sarcoma
3. Informed consent from subject (aged ≥18 years) or parent/guardian

Exclusion Criteria:

1. Individuals with sarcomas that do not fit the definition of those considered for this registry
2. Individuals who are unwilling to participate
3. Individuals who are unwilling or unable to provide written consent

About the study

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing.

Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Sponsor: Children's Hospital of Philadelphia · Participants: 1,000 · Started: Jun 12, 2023

Contact the study team

• Lauren Gutstein · Phone: 267-425-2029
• James Robinson · Phone: 215-590-2053

Official record on ClinicalTrials.gov — NCT05910307

Locations in the U.S.

Conditions

• Synovial Sarcoma
• Soft Tissue Sarcoma
• Cancer (all types)

From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.