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Lupus Landmark Study: A Prospective Registry and Biorepository

RecruitingObservational study

Lupus Nexus Landmark Study: A Prospective Registry and Biorepository

Who can join

Ages 18 to 110 · All sexes

Full eligibility criteria
Inclusion Criteria:

* Able to understand and comply with study procedures and voluntarily sign a written informed consent document
* Age 18 years or older at the time of enrollment
* Fulfill criteria for SLE based on one or more of the following classifications systems:

Systemic Lupus Erythematosus International Collaborating Clinic (SLICC) 2012 criteria; European Alliance of Associations for Rheumatology (EULAR)/American College of Rheumatology (ACR) 2019 criteria; 1997 revised ACR criteria; or Lupus is present per clinical assessment.

Exclusion Criteria:

* Not able to obtain consent
* Not able to meet protocol visit requirements
* Pregnant at the time of enrollment

About the study

The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).

Sponsor: Lupus Research Alliance · Participants: 3,500 · Started: Jun 28, 2023

Contact the study team

Official record on ClinicalTrials.gov — NCT05934149

Locations in the U.S.

AlabamaUniversity of Alabama at Birmingham, Birmingham
ArizonaUniversity of Arizona, Tucson
CaliforniaWallace Rheumatic Studies Center, Beverly Hills
UCLA, Los Angeles (Not yet recruiting)
District of ColumbiaGeorgetown University, Washington D.C. (Not yet recruiting)
FloridaUniversity of Miami, Miami
GeorgiaEmory University, Atlanta
IllinoisUniversity of Chicago, Chicago
MassachusettsBrigham and Women's Hospital, Boston
University of Massachusetts Memorial Health, Worcester
MissouriWashington University, St Louis
New YorkThe Feinstein Institutes for Medical Research, Manhasset
Columbia University Medical Center, New York (Not yet recruiting)
Northwell Health, New York
SUNY Upstate, Syracuse
North CarolinaUNC Chapel Hill, Chapel Hill
OhioThe MetroHealth System, Cleveland
TennesseeVanderbilt University Medical Center, Nashville
TexasUT Southwestern Medical Center, Dallas

Conditions

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.