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ATHNdataset Registry

American Thrombosis and Hemostasis Network ATHNdataset Registry

Who can join

All ages · All sexes

Inclusion Criteria:

* Any participant evaluated for or the potential to have a blood disorder who has an encounter with an ATHN Affiliate.
* Participants of any age.
* Participant is able to provide consent or assent; a Legally Authorized Representative (LAR) may provide consent on a participant's behalf if a participant is unable to provide self-consent

Exclusion Criteria:

* Any participant unable to provide consent or assent to participate in the ATHNdataset

About the study

The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems.

Doctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.

Sponsor: American Thrombosis and Hemostasis Network · Participants: 200,000 · Started: Oct 25, 2024

Contact the study team

• Emily Callegari, RN · Phone: 8003602846
• Carol Fedor, RN · Phone: 8003602846

Official record on ClinicalTrials.gov — NCT06820515

Locations in the U.S.

Conditions

• Hemophilia
• Blood Clots
• Hemophilia B
• Sickle Cell Disease
• Blood Disorders

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.