Home › Amyotrophic Lateral Sclerosis › NCT06885918
ALS Research Collaborative
ALS Translational Research Program
Who can join
Ages 18 and older · All sexes · Healthy volunteers welcome
Full eligibility criteria
Inclusion Criteria: * 18 years of age or older * Can communicate in written English * Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation Exclusion Criteria: * Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.
About the study
The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.
Sponsor: ALS Therapy Development Institute · Participants: 2,000 · Started: Sep 12, 2014
Contact the study team
- Alan S Premasiri, M.S. · Phone: 617-441-7200
- Beth Levine · Phone: 617-441-7200
Official record on ClinicalTrials.gov — NCT06885918
Locations in the U.S.
| Massachusetts | ALS Therapy Development Institute, Watertown |
Conditions
From ClinicalTrials.gov, data retrieved Oct 2, 2026. Each study sets its own eligibility; the study team decides who can join.