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Healing ALS Registry Observational Study (HAROS)
Who can join
Ages 18 to 110 · All sexes
Full eligibility criteria
Inclusion Criteria: * Diagnosed with ALS, MND or PLS Exclusion Criteria: * Smokers
About the study
This is a prospective, observational, online study of people diagnosed with ALS, MND or PLS referred to as HAROS (Healing ALS Registry Observational Study). Participants will enter information into an online ALS registry once per month, including their ALSFRS-R data, certain other symptoms, dietary intake, supplements, medications and other therapies, both conventional and integrative. Participants will also enter the hours spent on optional self-study and free online education. The investigators will assess the effectiveness of various therapies and education by measuring physical outcomes.
What is being tested
- Education about treatment options (other)
- Dietary Supplements: Vitamins, Minerals, Herbs, etc. (dietary supplement)
- Meditation, Prayer, Talk Therapy, Affirmations, Journaling, etc. (behavioral)
- Diet, various diets will be observed (other)
- Exercise, physical therapy, occupational therapy, speech therapy, sauna, EMS, massage and other therapies (other)
- ALS medications and other medications (drug)
Sponsor: Healing Advocates Registry and Ministry · Participants: 1,000 · Started: Jan 26, 2026
Contact the study team
- Healing ALS Study Administrator · Phone: 1-973-714-4621
Official record on ClinicalTrials.gov — NCT07233148
Locations in the U.S.
| Utah | Virtual, Park City |
Conditions
From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.