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Clinical Procedures to Support Research in ALS

Clinical Procedures to Support Research in ALS (CAPTURE-ALS)

Who can join

Ages 18 and older · All sexes

Inclusion Criteria:

* Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
* Receiving care at a clinical center that uses Epic as its EHR.
* Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).

Exclusion Criteria:

* Inability to understand English and/or Spanish

About the study

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.

Sponsor: University of Miami · Participants: 1,200 · Started: Feb 15, 2018

Contact the study team

• Michael Benatar, MBChB, MS, DPhil · Phone: 1-844-837-1031
• Jessica Hernandez · Phone: 1-844-837-1031

Official record on ClinicalTrials.gov — NCT03489278

Locations in the U.S.

Conditions

• Amyotrophic Lateral Sclerosis
• ALS and Motor Neuron Disease
• Spinal Muscular Atrophy

From ClinicalTrials.gov, data retrieved Sep 30, 2026. Each study sets its own eligibility; the study team decides who can join.