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Cancer Experience Registry (CER) for Cancer Patients and Caregivers

Cancer Experience Registry: An Online Survey Research Study to Understand the Experiences of Cancer Patients and Caregivers

Who can join

Ages 18 and older · All sexes · Healthy volunteers welcome

Inclusion criteria:

* Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer
* Live in United States, a US territory, or Canada
* Able to read and understand English

Exclusion criteria:

* None

About the study

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.

Sponsor: Cancer Support Community, Research and Training Institute, Philadelphia · Participants: 15,000 · Started: 2013-03

Contact the study team

• Erica E. Fortune, PhD · Phone: 202.659.9709

Official record on ClinicalTrials.gov — NCT02333604

Locations in the U.S.

Conditions

• Cancer (all types)
• Acute Myeloid Leukemia
• Breast Cancer
• Metastatic Cancer
• Chronic Lymphocytic Leukemia
• Chronic Myeloid Leukemia
• Liver Cancer
• Lung Cancer
• Melanoma
• Multiple Myeloma
• Myelodysplastic Syndromes
• Ovarian Cancer
• Prostate Cancer
• Stomach Cancer
• Bladder Cancer
• Colorectal Cancer

From ClinicalTrials.gov, data retrieved Sep 29, 2026. Each study sets its own eligibility; the study team decides who can join.